Friday

July, 30th, 2004
Today was such a great day. It started 11.00 AM. St Jude hosted first Talent show ever. :)
Regina, Claire, and brook sang a song and danced. I forgot what is the name of it but it went someting like this - thumbs up, elbows back, feet apart, knees together , bottoms up etc. They learned it during the summer camp and they all did great. Their little performance was a hit. Everybody loved it. Regina was wearing her Belle dress and shoes and was cute as ever. She got so many comments how pretty and beautiful and cute she looks. I'm so proud of her. At first she told me she does not want to do it, but finally when we went to back to hospital she said she was ready to sing and dance is front of the audience. AND she did not get stage fright! You go girl!!1 :)

After that she had her Radiation treatment- she did really well. Did not move at all. Then we went to Costco , bought some water. Then I found Kohls- my favoite store in the Whole wide world. I needed a suitcase and since kohls always has sails I got one bright red suitcase on sale 60% off- I payed 78 dollars. It is huge red suitcase :)

After that we went to see The Cinderella story- she loved it. It was to " CHEEZZZZZY " for me. Boy meets a girl, girl meets a boy, blah, blah , blah. Classic Disney. But oh well, all the things we do to make our kids happy. And I want to make her happy, but the same time I'm really , really tired doing everything she wants. I want to do something I WANT! She even gets frustraited when I talk to somebody Little WAY to long- 10 minutes. She let's me know by interrupting me and telling me that MOM, YOU NEED TO TALK TO ME!! WTF?????? I've been told by 4 year old what to do, what to wear and with whoom to talk to. Only thing she does not tell me is WHAT should I eat. But she did mention that I got bigger. Yeah, you heard it right. SHe monitors my weight.
Righ now she is in bed and watching video. I just changed her dressing(central IV line dressing, if you wonder) . She wanted to play here instead, but I told her that It is my time now. Chill out babe!!!

Princess in Training.

Today was such a great day. It started 11.00 AM. St Jude hosted first Talent show ever. :)
Regina, Claire, and brook sang a song and danced. I forgot what is the name of it but it went someting like this - thumbs up, elbows back, feet apart, knees together , bottoms up etc. They learned it during the summer camp and they all did great. Their little performance was a hit. Everybody loved it. Regina was wearing her Belle dress and shoes and was cute as ever. She got so many comments how pretty and beautiful and cute she looks. I'm so proud of her. At first she told me she does not want to do it, but finally when we went to back to hospital she said she was ready to sing and dance is front of the audience. AND she did not get stage fright! You go girl!!1 :)

After that she had her Radiation treatment- she did really well. Did not move at all. Then we went to Costco , bought some water. Then I found Kohls- my favoite store in the Whole wide world. I needed a suitcase and since kohls always has sails I got one bright red suitcase on sale 60% off- I payed 78 dollars. It is huge red suitcase :)

After that we went to see The Cinderella story- she loved it. It was to " CHEEZZZZZY " for me. Boy meets a girl, girl meets a boy, blah, blah , blah. Classic Disney. But oh well, all the things we do to make our kids happy. And I want to make her happy, but the same time I'm rea�������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������������

ALMOST THERE!!!

Her last radiation session will be on 4th of August. :) We are almost done. I'm so exited about it. SHe keeps doing great and I'm very proud of her. SHe is real trooper. I can not belive how fast time went by. I thought it'll never end but it did. Now we have to get ourselves ready for  high dose chemo. I'm not looking forward for that. :(

My dh is visiting

yep, he is here!!! Last night we went to chilis and then thunderstorm hit.

Today we just did some driving and now he is sleeping. I swear. HE IS SLEEING!! WTF????? He  sees us  once in a whil and  instead of spending time with usm HE SLEEPS??
Around 5 pm we'll go to TexasBrazil  for dinner . We made reservations for 5.30.

I was supposed to meet one or my online friends today But I was little scared to   call her. She sounded  little pissed off yesterday when we spoke and I did not want to make her more pissed.

Regina is doing great. 8 8 more radiation treatments and she is done with THIS part. On sept 8th, shell be admitted again for chemo. We allready got the schedule. She'll have to go true bone marrow transplant . I hope she'll do fine.,

I'd update you little more, but I just got my nails done and it is Fuckin' hard to type with long nails.

Great news

REgina is off the sedation list- which means she can eat her breakfast. SHe does not have to wait until noon or afternoon before her first meal. She had her first Radiatin session without sedation on Monday. IT was 30 minutes long because they had new markings and they had to make new patch for her eye. SHE DID IT! She laied still for 30 minutes. I'm so proud of her! SHe is my hero :)
Righ now she in camp for 30 minutes- instead of 2 hours. Because she has radiation around 10 am.

Zoei

It was 11.10 in the morning. Angels came to her and took her with them . She opened her little tired eyes, Told her mom " I love you", closed her eyes and fell into deep never ending sleep.........
She will be missed and remembered by all of us.

Fox13 news

last night Toys r'us delivered lots of games to Ronald MCdonald house. Giraffe was with them And of course fox13 news. . last Night around 9 Pm the showed Rmh people on tv and Regina was on news also. Want to know something fun?? My growing butt got to be on big screen . lol.

Zoei is not doing good. All her family was here, er uncle came to see her. Everyboyd was crying today. One of the saddest days here. HEr gram. told everybody this morning they know it's her time soon. Everybody wishes they could do something. But nobdody really could......

Miss Brooke!!!!

She is Reginas Fast ForWord teacher. She told me that she'll leave in 2 weeks. :( TO bad. I really like . She is nice and patient and Regina seems to like her. I'm worried that It'll take more time for Regina to get used to New one. And her style might be different and .... Ok, time will show. :)

We have saturday 8.30 Radiation apointment. Last one for Full head and Spine. Starting from monday Tumor bed only Radiation. She got new markings today. And her hair keeps falling out . :(

Zoei's Grandma Gave me one beautiful fleece blanket . It was Zoeis, never used, brand new. And Regina likes it, she wants to sleep with it tonight. . It is light purple with white and dark purple flowers on it. :) It's beautiful. :) Thank you !! I will remember date November 30!!!!

And I thought I was ready...

Reginas Hair started falling out 2 days ago. I really thought That it would not bother me at all but it does. Today when I pulled some of it gently away, she took it back from me and tucked it under her scarf. She almost started crying- I was not that strong. I did start crying. She loves her hair and she always did and now it's taken away from her. Her hair is her security blanket. She wants to have long has as sleeping beauty does.
But there is really nothing we can do. Se does not want to have wig and she refuses to believe that ALL of her hair will fall out. I feel so sad and helpless.... I know it's only hair, but for her her hair means a world. :)

ANother day!!

And another toy from Fast ForWord teachers. SInce she is soo young she gets a toy every time she is finished with her 1 hour computer program. ANd let me tell you, it is hard program. Today she got some Diva toy with lots of clothes.

Her blood counts were ok. Not the best but! Ok ! Now she is geting her 9th radiation treatment and after that another MRI and we are ready to leave this place for today. Her first meal will be today around 5 pm :( Poor kid.

During the weekend I tryed to feed her as often as possible and because of that she gained 300 grams!!!! I'm really happy about that. I know she'll loose some during this week.

+

Ashlee Simspson

She is so beautiful :) REgina and I had chance to meet her today. She was promoting her CD "autobiograpy" She and her band member performed 3 songs. She sounds great in LIVE! There were no microphones. HEr voice is really powerful and beautiful. Regina was exited about her singing. She loves pop music and Britney Spears so Now she has new favorite. :) She also loved her hair and ear rings :) Thats my girl :):):)
Ashlee was sweet enough to tell her that she is cute. She even asked were are we from:) Kids seemed to like her and Ashlee did everything in her power to fit in. :) She told something great to all the kids asked autograph from her.:)

Night to remember :)

Zoe

Pray for her. She is 5 year old chemo patient. Today her parents and granparents got really bad news. Her journey started 2 years ago with tumor in her kidney, now it's in multiple places in her brain. Doctors told her family that zoe has less than 10% survival chance. :(
2 weeks ago she was full of energy. Now She hardly ever opens her eyes and almost does not eat. She is all skin and bones :( Her family keeps praying and hoping for the best .They say it's all now in HIS hands....

And week is gone....almost

8 Treatments finised. Now we have long weekend ahead of us. LONG and slow and boring because everybody is leaving Ronald McDonald house. I feel like we'll be the only family staying there for this 3 day weekend :( It sucks to live so far from CA.

** During the next week Dr Gajjar is out of office. I got Reginas next week scedule. Next week sucks. ALl her apointments are NOON ones. I'm 100% sure its because Dr Gajjar is out of office and not pushing radiation guys to take Regina in Early. I can handle this one week. I just feel sad for regina because some days she'll get her first meal around 4-5 pm. Which is really bad because she is allready loosing weight and I don't want her to loose more.

She is doing reat . Bad thing is Her taste has changed ( foods) and her apetite is down.